A family from Northampton took part in the Silverstone Half Marathon to raise money in memory of their baby who lost her battle against a rare lung condition.
Hope Davey passed away last September at the John Radcliffe Hospital, barely a year after she was born with Alveolar Capillary Dysplasia (ACD).
Her mother, Kerry, has been fundraising for the David Ashwell Foundation, the charity that supported her family, ever since and on Sunday, Mother’s Day, ran the Half Marathon at Silverstone.
She said: “I’m a bit achey but it went very well. I did the race with my daughter, Regan, and our friends and we all wore orange t-shirts because that’s the colour Hope would always be drawn to.
“Hope was the only baby to live with this condition as all babies with ACD don’t live long after birth. But our daughter proved so many doctors and consultants wrong.
“I want to share my daughter’s story in the hope that it might in some way help other parents and families going through the heartache that we have and are still are going through.”
Hope was the only baby to live with this condition as all babies with ACD don’t live long after birthKerry Davey, Hope’s mother
Since they began fundraising, the Davey family, from Scribers Drive in Upton, have generated £3,497 and have been promised further support by Tesco following Sunday’s race.
The David Ashwell Foundation supports research into the rare illness, which so far has no cure.
It is caused by an abnormal development of the capillary vascular system around the alveoli of the lungs and babies who have it may appear healthy but tend to develop fatal respiratory problems within hours.
The charity was set up in memory of David Fazlolla Upeska Ashwell who died of ACD in March 2011 only two weeks after he was born.
The efforts of the Davey family and their team have been mentioned in the USA-based Alveolar Capillary Dysplasia Association’s newsletter. In it Mrs Davey said: “I don’t think we will ever fully recover but, since losing Hope, I have found peace when I run. I put my earphones in and it’s me, the road ahead, and my baby girl.
“That brings me to where I am now, running the Half Marathon to help find a cure so other families won’t have to go through the heartache we have. I want people to see this and raise awareness and do their bit to bring hope into their family’s life around the world.”
The Daveys were among 7,000 who took part in the popular annual race at Silverstone, where runners gather to raise thousands for different charities every year.
Celebrity athletes this year included paralympic champion David Weir, TV and sports presenter Charlie Webster and Casualty actor George Rainsford, who all ran in support of Leukaemia & Lymphoma Research.
To support them further, visit: www.uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=Daveyfamily&isTeam=true