The family of a severely disabled boy from Northampton have launched a fundraising appeal to build a ‘multi-sensory room’ for him in their home.
Lewis Herbert, aged 12, was diagnosed with West’s Syndrome at three months old which then developed into Lennox-Gastaut Syndrome (LGS) - a rare form of epilepsy which means he can have more than 100 seizures every day.
Lewis is unable to walk or talk and requires 24-hour care from his family at their home in St Benedicts Mount in West Hunsbury.
In their bid to give him something to safely play and interact with, Lewis’ parents, Gary and Lexi, have begun their ‘A Life for Lewis’ campaign to raise money to create a multi-sensory room, complete with lights, mirrors and bubble-tubes, in their home.
They say that Lewis loves the sensory room at the John Radcliffe Hospital in Oxford and that it is the only thing that makes him “happy, content and relaxed.”
To raise sponsorship money, Gary has pledged to stay entirely sober for a year and Lexi will be taking part in a 5k Black Light Run with friends and family members next March.
Northamptonshire County Cricket player, Steven Crook, has also pledged his support to the campaign.
He said: “When I was approached by Lewis’ dad I was more than happy to try and help Lewis realise his dream of a sensory room at home. I know how much this would mean to him and the immeasurable impact it would have on his life.
“It would be amazing if people were able to get behind this fantastic cause by donating to A Life for Lewis Appeal based on my performances for Northants Cricket for the 2015 season.”
If anybody would like to sponsor Gary, Lexi or Steven, or would like to donate to A Life for Lewis, contact: firstname.lastname@example.org. Alternatively, you can donate directly at: www.justgiving.com/alifeforlewisappeal